Psychosocial impact for families and health professionals

Genetic testing and precision medicine has the potential to revolutionise the diagnosis, treatment and long-term management of many chronic illnesses in childhood, yet the psychosocial implications for children and their families remain unknown. 

This project will be the first to assess patients’, parents’ and healthcare providers’ experiences, hopes and impacts of precision medicine trials and genetic testing across illnesses.  It will enable us to identify common impacts and barriers of precision medicine and genetic testing across illnesses, whilst also identifying unique challenges in each disease. 

 

Data collected from the project will inform the development of a decision aid for families and educational resources for healthcare providers, improving the quality of informed consent, families’ understanding of genetic testing and precision medicine and their satisfaction with care.

Claire Wakefield.png

Head, Behavioural Sciences Unit, Kids Cancer Centre and UNSW Sydney

Project lead
Prof Claire Wakefield
Brittany Mcgill.png

Research Fellow, Behavioural Sciences Unit, Kids Cancer Centre and UNSW Sydney

Project lead
Ms Brittany McGill
Janine Vetsch.png

Team Lead, Ethics and Genetics, Behavioural Sciences Unit, Kids Cancer Centre and UNSW Sydney

Project lead
Dr Janine Vetsch

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